Raychel Ferguson who died in Belfast hospital after being transferred from Altnagelvin hospital
Raychel Ferguson died at the Royal Belfast Hospital for Sick Children 18 years ago.
Northern Ireland’s attorney general John Larkin QC has directed the coroner to open a new inquest into her death.
“All we ever wanted from the start was the truth and we didn’t get it,” her mother Marie Ferguson told BBC News NI.
The Western Health Trust said it would not comment on individual cases but it “always cooperates fully and openly in every coroner’s inquest.”
Raychel’s death in June 2001 came a day after an appendix operation at Altnagelvin Hospital in Derry.
Hyponatraemia is an abnormally low level of sodium in blood and can occur when fluids are given incorrectly.
Raychel’s parents Ray and Marie Ferguson have long campaigned to find out the truth about their daughter’s death.
A previous inquest into their daughter’s death held in 2003 was a “shambles”, said Mrs Ferguson.
She said a number of key documents were at that time withheld from the coroner.
“The full circumstances around what happened to Raychel were not told to the coroner,” she added.
“I am hoping this time the true circumstances about Raychel’s death will be put out there.”
Last year an inquiry into the deaths of five children in Northern Ireland hospitals, including Raychel, found her death was avoidable.
The 14-year-long Inquiry Into Hyponatraemia-related Deaths was heavily critical of the “self-regulating and unmonitored” health service.
In his report, Mr Justice O’Hara found there was a “reluctance among clinicians to openly acknowledge failings” in Raychel’s death.
He said Raychel’s death was the result of “negligent care”.
In 2013, the Western Health and Social Care Trust admitted liability for her death.
“I often sit and think: Do the doctors and nurses and the legal advisors ever sit and think was this worth it?” said Mrs Ferguson.
“They have put us through 18 years of hell.
Inquiry chair Mr Justice O’Hara found that four out of the five child deaths were preventable
“I will fight and leave no stone unturned until the full and absolute truth of what happened to her is out there.”
Raychel’s father Ray said he and his wife had never came to terms with the loss of their daughter.
“We can’t put into words how difficult it is – we miss her every minute of every day,” he added.
“You learn to live with it, try to cope but the hurt is always there.”
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